Sunday, December 06, 2009

Well...

Okay, I need to back off a little. I am extremely thankful to say that Jake is over his milk allergy and they "think" he is over his egg allergy. However, it is going to take some time before he can just eat both if everything goes well. His back is still a mess from his skin testing Wednesday. His got additional drugs and increased his existing meds. We are supposed to wait until all is calm and then start the dairy. Bad parents we are, we have given him some already (he is on the new doses though). I have added 2%milk to his rice milk once a yesterday and once today. I have given him one of his favorite things in addition to that. It sounds like he is saying "wickert" but what he is jumping up and down and hollering for is yogurt. He LOVES yogurt. I got him some of the little bitty kid cups but I know he wants a whole carton. I thought we should go small for awhile. We tried giving him yogurt awhile back and we thought it was making his cheeks break out. Supposedly, that isn't it. They told us now it happens if he gets a lot of soy. That presents some significant issues. But if we can have eggs and dairy it should be a bit easier to cut the soy back. Soy is in practically everything packaged or ready-made of course! But now I should have an easier time trying to make things he can eat. I do most of my cooking from scratch so it is easier to control the ingredients.

So I feel a little bit bad for being so mad at the grandparents. I did make sure that they understood that they still can't just feed him whatever they want. This is going to take awhile to make sure he won't react to these things and to get his body used to dairy. His poor digestive system doesn't know how to handle it yet. Okay, but there is still the peanut portion of my irritation with Grandma. Mike talked to his dad and it didn't really go that well. Jake had such a bad skin reaction to the dilute peanut serum. They nurse and the PA doing the testing brought several other nurses in to look at his back because his reactions were so severe. Just a little education. That is fine. I just felt so miserable for him. The process hurt him and then the allergic response made his whole back go nuts. Now his back is covered in eczema and little scratch marks.

So, as I was saying, Mike talked to his dad about the peanuts. He was sorry they left the cup out. They never leave Jake alone so it isn't a problem. Mike told him that obviously it is a problem because even if they are in the same room with him, if he finds a cup of peanuts it is too late to prevent it. He is a little speed demon. Mike pointed out that he will have picked them up and have one or more in his mouth before they even realize what he has. We all know how they get something you don't see and put it in their mouths. We have all fished something out of baby mouths. Mike told his dad that they can no longer have peanuts in their house. That went over with Mike's mom like a ton of bricks. My suggestion had been that the peanuts/peanut butter need to be up on the top shelf in the cupboard not down at Jake's eye level like they are now. They still can't eat them when he is there and they have to make sure and clean everything up right then and there. Mike said absolutely not. No peanuts at all. He acknowledges that it is just too much for his mother to have to do to get it right. (okay, he said "you know she isn't smart enough to handle it" but I feel bad writing it even if it is true). Poor Mike got yelled at enough that he has given up trying to bring peanut butter M&Ms in the house in his lunch box from work. I admit that both Mike and I will indulge in our love of peanut butter when we are not at home and it will be a long time before we will be around Jake. It just isn't worth the risk to have the allergen around Jake. But grandma eats a lot of peanuts. A lot. A lot of candy containing peanut butter too (goes well with her diabetes and all). I'm not sure how this is going to work out. Mike may not let Jake go over there at all, ever. That helps our problem.

I had such a bad day at work Friday that had my boss been there I would have quit. I suppose it was in my favor she wasn't though, huh. I am a service coordinator for plastics and gynecology right? Well, my favorite charge nurse is the one that makes our room assignments every day. I don't ever get to be in my services. We have one plastic surgeon and she has one scheduled day a week in the OR. I get to work with her maybe every three weeks. But there is gynecologic surgery four days a week at least. I have not done a case in more than a month. I think it is very hard to do your job if you never get to work in the specialties. You are completely reliant on what others tell you/ask of you. If your coworkers don't tell you something needs to be changed on a card it can't happen. So then if the doctor decides to change something and tells the people they are working with and they don't pass it along, then next week when they want to do it exactly like they did it last week no ones. Then the doctor is pissed. Another issue we have is making sure a surgery gets scheduled in the computer for the right actual procedure. When the person puts it in the computer they have to match it up to a card. That card tells the people who pull the case what to pull and the people who do the case what they need and what to do. Well, if you don't match up a surgery to the right card it is a huge problem. It wastes a lot of people's time and it causes a lot of frustration. It also costs money. Supplies always end up getting wasted then. Well, Friday I got my ass chewed the entire time I gave a lunch to a coworker in the room where the plastic surgeon was working. She barely took a breath. There was nothing I could say or do, she just wanted to be mad at someone. Making sure what is on her cards is right is my job. I don't know how to get the people that schedule to get the right cards. I have tried and tried. I have told them to ask me. I have explained and explained. I finally have the ability to go in and change it in the computer but that is something that is very hard for me to do when I am in cases all day. We finally got permission to get slight overtime to work on some of our service coordinator duties. We can have one hour a week. That is something, but really need one day a week (not overtime, just a regular day) but we don't have the staff. Anyway, I was ready to quit after my ass chewing because I have been so frustrated about never getting to be in my own services. I'm so glad I got a warm welcome when I got there. Can't wait to work with her tomorrow because it is my once every three weeks!

Last but not least, Jake is allergic to the dogs and the cat. For this moment we aren't going to do anything. The dogs don't come in the house. The cat is almost fifteen. She isn't allowed in the bedroom and that is the biggest recommendation besides getting rid of her. My hormones are all over the place and that doesn't help with any of this. I am finally doing better. The pneumonia is gone. Still coughing, but a lot less. My energy is a lot better. I just feel like I am on the verge of tears a lot. I suppose that is why my ass is so big.

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